When I first started dating my husband, who has CF, it felt like diving straight into the deep end of the CF world. I was completely overwhelmed at first, but everything changed when I discovered a ...
I spent my childhood and young adulthood being told I was “too young and healthy” to be dealing with the health issues I experienced. But as an adult, I was determined to find answers, and eventually, ...
Growing up with CF, running was never an easy thing for me. Despite that, I dedicated myself to my school’s cross-country team for years and earned a spot on the varsity team. When the chance to ...
Growing up with CF, I always felt like my life was a ticking time bomb. Growing up, I didn’t really think about my own mortality and my life span; that all changed when I turned 18. I vividly remember ...
Learn about cystic fibrosis, a genetic disorder that affects the lungs, pancreas, and other organs, and how to treat and live with this chronic disease. 12 min read What Is Cystic Fibrosis? Cystic ...
Your transplant team and CF care team can help you think about whether to get listed. Knowing the risks and benefits can help you decide when to get listed. It also helps to understand the factors ...
The Cystic Fibrosis Foundation is aggressively pursuing potential treatments for people with CF who have nonsense and rare mutations who will not benefit from drugs known as modulators, which correct ...
If the transplant committee thinks transplant surgery would be harmful to you, ask your transplant team about what options you have. It is possible that you will need to receive treatment for a ...